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My Journey with Fibromatosis:

So inspirational. Beautiful & strong girl. Amazing post, this will definitely raise awareness ❤

My Journey with Fibromatosis

Reasons for writing this.

It has been around 2 years since I discovered the lump and nearly a year since my first operation. My journey has been an extremely tough one. It has affected me physically, mentally and emotionally. It is a rare condition and is often misdiagnosed for other things. Therefore, I believe that fibromatosis awareness needs to occur, people need to understand what it is. Many of you won’t know this but fibromatosis has no clear treatment plan. The treatment you are offered is dependent upon where the tumour is located. However, it will also depend on your consultant, where you have been referred and what they want to do. Many individuals have only been offered one treatment plan as their consultant didn’t want to refer them. As it is rare they wanted to keep the case for themselves. You may be shocked, but I have heard many…

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